Patient Advocacy
What Hemophilia Taught Me About Showing Up
It is not the grand gestures that save us. It is the neighbor who drives you to the hospital. The coach who finds a way. The teacher who never makes you feel different.
January 12, 2026
Newsletter
Words from the road
Patient advocacy updates, book news, and the stories Eddie carries back from stages, hospitals, and hometowns.
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New posts, speaking dates, and book updates — a few times a month.
Book
Why I Wrote The Town That Bled Love
For years I thought our story was too small. Then I realized that the smallest stories are often the ones that change the world.
December 3, 2025
Memoir
Three Brothers, One Inherited Condition
People ask what it was like growing up with hemophilia alongside my brothers. The truth is: I cannot imagine doing it any other way.
November 18, 2025
Patient Advocacy
Speaking to the Caregivers
To every parent, sibling, nurse, and friend who has stood beside someone with a bleeding disorder: you are the reason we keep going.
October 7, 2025